On the "Big Schism" in TTTS today.

Hello Everybody, I hope you all made it through the Holidays OK. If you made it Here, you probably are following the TTTS Boards on FaceBook. Which would tend to make you Aware of the Big Schism, or as some of us might refer to it, the "Mary & the DS vs. The Rest of the TTTS World..." I'll try to get it out to you in as Concise a fashion as possible.
 Mary Slaman-Forsythe runs the International TTTS Foundation, an 501(c)(3) that provides information & support to those who are affected with Twin to Twin Transfusion Syndrome, TTTS. So Far, So Good. In a nut-shell, here's the issues that will eventually Un-Seat this Enterprise from the "forefront" of TTTS Diagnosis & Treatment Information Providers:
1). There aren't enough Survivals to support the "Image" that she's trying to Project to the General Public. It is an Unfortunate & Somber Fact that there Never Really Have Been! Up until Now, the Culture of this condition has been defined by Mary & a rather small group of Double Survivor moms who post Over & Over on Facebook with the latest pictures of their Cute Cute Twins. Which is OK, but nowhere in her site or on her Facebook Page does it say that these Outcomes represent probably less than a third (< 33%) of the total number of cases diagnosed. TTTS has a Mortality Rate that can be accurately described as "Sky-High" & "Carefully Hidden". A general, somewhat rough breakdown of Case Outcomes would look like this: Around 55%, a little more than Half, lose one. Around another 15-30% lose Both. the Remainder comprise the DS or Double Survivals.